Quality of life in patients with primary and secondary lymphedema in the community.
Identifieur interne : 000255 ( Main/Exploration ); précédent : 000254; suivant : 000256Quality of life in patients with primary and secondary lymphedema in the community.
Auteurs : Katharina Herberger [Allemagne] ; Christine Blome [Allemagne] ; Kristina Heyer [Allemagne] ; Franziska Ellis [Allemagne] ; Karl-Christian Münter [Allemagne] ; Matthias Augustin [Allemagne]Source :
- Wound repair and regeneration : official publication of the Wound Healing Society [and] the European Tissue Repair Society [ 1524-475X ] ; 2017.
Abstract
Lymphedema is a complex and burdensome medical problem and requires continuous specific therapy. The aim of this cross-sectional study of community lymphedema care in the metropolitan area of Hamburg, Germany, was to evaluate health-related quality of life (QoL) in lymphedema patients. Generic as well as disease-specific health-related QoL was assessed using EQ-5D and FLQA-LK, respectively. Pain was assessed using a visual analogue scale (VAS). About 301 patients (median age of 60.5 years, 90.8% female) with lymphedema of any origin were included. About 66.4% had lymphedema, 24.1% combined lipolymphedema, and 9.5% lipoedema. Mean disease-specific QoL (FLQA-LK) was 2.4 (range 0 = no to 4 = maximum burden). The highest impairment values were observed in subscales for physical complaints, everyday life, and emotional well-being. Mean EQ-5D VAS was 70.4, mean EQ-5D score 63.3. Lymphedema was associated with major impairments in QoL, which differed for subgroups of pain, clinical severity, and comorbidity. Pain as a common problem for lymphedema patients seemed to be underestimated and undertreated. Early diagnosis and structured treatment strategies are urgently needed.
DOI: 10.1111/wrr.12529
PubMed: 28370792
Affiliations:
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German Center for Health Services Research in Dermatology, Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.</nlm:affiliation><country xml:lang="fr">Allemagne</country><wicri:regionArea>CVderm - German Center for Health Services Research in Dermatology, Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf, Hamburg</wicri:regionArea><placeName><settlement type="city">Hambourg</settlement><region type="land" nuts="2">Hambourg</region></placeName></affiliation></author></analytic><series><title level="j">Wound repair and regeneration : official publication of the Wound Healing Society [and] the European Tissue Repair Society</title><idno type="eISSN">1524-475X</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Lymphedema is a complex and burdensome medical problem and requires continuous specific therapy. The aim of this cross-sectional study of community lymphedema care in the metropolitan area of Hamburg, Germany, was to evaluate health-related quality of life (QoL) in lymphedema patients. Generic as well as disease-specific health-related QoL was assessed using EQ-5D and FLQA-LK, respectively. Pain was assessed using a visual analogue scale (VAS). About 301 patients (median age of 60.5 years, 90.8% female) with lymphedema of any origin were included. About 66.4% had lymphedema, 24.1% combined lipolymphedema, and 9.5% lipoedema. Mean disease-specific QoL (FLQA-LK) was 2.4 (range 0 = no to 4 = maximum burden). The highest impairment values were observed in subscales for physical complaints, everyday life, and emotional well-being. Mean EQ-5D VAS was 70.4, mean EQ-5D score 63.3. Lymphedema was associated with major impairments in QoL, which differed for subgroups of pain, clinical severity, and comorbidity. Pain as a common problem for lymphedema patients seemed to be underestimated and undertreated. Early diagnosis and structured treatment strategies are urgently needed.</div></front></TEI><affiliations><list><country><li>Allemagne</li></country><region><li>Hambourg</li></region><settlement><li>Hambourg</li></settlement></list><tree><country name="Allemagne"><region name="Hambourg"><name sortKey="Herberger, Katharina" sort="Herberger, Katharina" uniqKey="Herberger K" first="Katharina" last="Herberger">Katharina Herberger</name></region><name sortKey="Augustin, Matthias" sort="Augustin, Matthias" uniqKey="Augustin M" first="Matthias" last="Augustin">Matthias Augustin</name><name sortKey="Blome, Christine" sort="Blome, Christine" uniqKey="Blome C" first="Christine" last="Blome">Christine Blome</name><name sortKey="Ellis, Franziska" sort="Ellis, Franziska" uniqKey="Ellis F" first="Franziska" last="Ellis">Franziska Ellis</name><name sortKey="Heyer, Kristina" sort="Heyer, Kristina" uniqKey="Heyer K" first="Kristina" last="Heyer">Kristina Heyer</name><name sortKey="Munter, Karl Christian" sort="Munter, Karl Christian" uniqKey="Munter K" first="Karl-Christian" last="Münter">Karl-Christian Münter</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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